Journal article
Supportive Care Needs of Young Adults With Endometriosis: An Open-Ended Online Survey and Exploration of Unmet Needs
L Taffs, N Waters, J Marino, C Rapsey, M Peate, JE Girling
Health Expectations | WILEY | Published : 2024
DOI: 10.1111/hex.70045
Abstract
Objective: The aim of this study is to identify and explore the unmet needs of adolescents and young adults living with endometriosis. Design: An open-ended online survey was conducted, with questions derived from prior research looking at areas of unmet need in healthcare, career and work, financial, information, psychological, social and cultural domains. Setting and Population: Self-selecting 18-25 year olds with surgically diagnosed endometriosis (self-reported) currently living in Australia were included as participants. Methods: Invitation to participate in an open-ended online survey was shared through the social media of Australian endometriosis organisations and the Royal Women's Ho..
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Grants
Awarded by University of Otago
Funding Acknowledgements
We express our gratitude to EndoActive, Endogram and The Royal Women's Hospital Melbourne for their support in promoting our study on their social media channels. Our thanks are due to the study participants who generously shared their personal stories. We also thank both Emma Steele, whose earlier research into the unmet needs of endometriosis has laid the groundwork for our current study, and Anna Li for her assistance with the ethical approval process. M.P. was supported by a University of Melbourne Department of Obstetrics and Gynaecology MCR Fellowship. M.P. and J.E.G. would like to acknowledge project funding from Endometriosis Australia, which allowed them to initiate the study on unmet needs in endometriosis. J.L.M. is supported by the NHMRC Centre of Research Excellence in Adolescent Health (APP 1134984) and NHMRC Project Grant 1161445. Open access publishing facilitated by University of Otago, as part of the Wiley - University of Otago agreement via the Council of Australian University Librarians.